No actually, today was mostly good. Had an easy time waking up... and actually woke before the alarm... squeezed in the cardio with weights (not to sound impressive as it's only 3s and 5lb) before the kids had a chance to assault my kitchen for breakfast. I thought I was doing really good! Then I noticed the cell phone wasn't connected to the wifi... memories of last month's data overage charges fresh on my mind, resulted in spending the next hour one my cell phone with Verizon when I finally figured out the internet wasn't the only thing not working this morning. Though having the land line go down is actually somewhat of a relief. The only folks who call my house are usually scammers or have no intention of actually talking anyhow.
Still... we had a great day! Like things just went smooth... mostly. I never go around to folding the daily dose of laundry, so that's backed up, as is prone to happen if I don't wash, fold and put away ever. single. day. even. Sunday.
Still... good speech and OT session.
What I'm noticing though... life is hectic, and it just is what it is, and I'm okay with it. But the sight of us, even in our most perfect of hours, can still overwhelm other folks. I don't know what I can do about that. I'm sorry it worries or upsets them, but there's nothing I can't think of to remedy that for them.
I'm not sure what to make of an assertion a friend posted several weeks ago. It was suggested that "young" moms who refuse help are denying other's works of charity... or something like that. I've tried to wrap my head around it, but can't help but feel entrenched on the side of the young mom who prefers to take her herculean task on by herself rather than accept help... especially if they're strangers. And as chance would have it, since this came up, I've had two happenstances... only two mind you where a stranger verbally offered to help me, but I wasn't in need of help.
The first was last week as I was rushing the gaggle of kids out of the van, I'd managed to score a parking spot with a vacancy next to the sliding door. Just as I'm loading my 2yo onto my back in my soft structured carrier (SSC), a woman turned her car into the open spot, where I was standing. Being mid mount I can't really get out of her way... and she stopped, asking out of her window in all earnest, "do you need help with that carrier?" All I wanted her to do was not hit me with her car. The last thing I "needed" was someone to try and help. I've trained my big kids to check me, and usually ask them to "tug the top" of the SSC body if I sense it's not all the way up. So I really, honestly, and truly do not "need" help from a stranger. Am I being uncharitable? Selfish? Really? I can't quite figure out what I can do about it... being a bit busy trying to ensure we get out and back without incidents, I guess selfish and self centered is how I am.
Today, I made an extra effort to sound grateful, but sincere when a woman dashed across the lot (mind you she still had her arms filled with her own bags) to ask if I needed help loading my stroller into the van. With the above posting in mind I told her, "No, (paused with smile) I've got this, as I collapsed the stroller in 2 seconds (cause it's really one of the easiest on the market), and "I promise, this isn't too hard, but thank you so much!"
Besides, if I don't put it in "just so" it won't fit in the space behind the seat... even my husband can't always remember the exact way it goes and he'll resort to removing the top seat to make it fit. So, honestly, it really is easier and faster if I just do it myself.
But I've noticed a distancing from folks... and I guess it could be me, or them. Whether I'm inadvertently putting off distancing vibes even though I don't mean to, but bringing myself to cinch in these trailing relationships, that seem so far away now... well I'm not sure I know how, and doubts of whether they even want to be that close linger. Upon real honest contemplation I think I might just be too busy and caught up in my own little world (that of my activities of daily living)... when I think about what I have time to do to improve upon the friendships I regret there's very little time and capital.... and yes, sometimes I do feel like it's a lack of $ or status that might also be a hindrance too... and well, not much I'm going to be able to do about that at the moment... though it doesn't stop me from thinking about it none the less.
I've trying to read,
Different... Not Less, a compilation of stories written by older adults on the Autism Spectrum. To be honest, I've finding it challenging because it makes me wonder if there's a difference between the "Spectrum" and having introverted tendencies... and if being introverted is just another rung on the "Spectrum" ladder... because I can relate to some of these folks... somewhat. I started reading the book to try and understand my son's diagnosis, but now I just feel, for lack of a better word, unsettled.
Since changing our therapy day, our new time slot exposes us to other children on the "Spectrum" who are more profoundly affected. Today I watched a pre-teen crawling around on the floor repeatedly punch keys on his augmented communication device. He's non-verbal. Having heard stories of folks with severe autism breaking the communication barrier to alert the world that they do in fact think and have awareness, I couldn't help but feel a little distressed whenever he punched the buttons for the words "help, eat, and stop." Was he really in pain, or something... or just stemming? I wondered how his care givers could tell... Inside wondering what it must be like for him to go unable to really communicate with others. Also I wondered how ought I respond? Should I pretend I don't notice him, or smile? Say something should he look my way? I can see other, more out going sorts, who just have a natural ability to engage folks in conversation or in this case, one sided communication. I don't think I have that gift.
My son can speak, formulate sentences, and even writes. His spelling is actually pretty good, but it's clear that there's more in his head than he can find the words for.... and quite frankly, I feel the same very often as well. I've often struggled with trying to formulate my thoughts into words, and in a way that is conveyed in a way I'd intend...sometimes there's a misconnect, and I know how uncomfortable that can be.
But today was a full, and blessed day... honestly and truly.